Pub holds fundraiser for little-known syndrome

First published in Times Series: Photograph of the Author by

A New Barnet pub is holding a quiz and raffle to raise money for a little-known, and severe syndrome.

The Queens Arms, in Great North Road, will hold the event on April 17 in support of the Rett Syndrome Research Trust UK.

Rett Syndrome usually affects young girls at the age where they start to walk and talk.

It causes them to go backwards in their development, and symptoms include breathing difficulties, digestive problems, fragile bones, extreme anxiety, seizures, tremors and even sudden death.

There is currently no cure.

The pub chose to support this charity as a friend of the pub’s manager has a daughter with the condition.

The organisers hope to raise more than £700, and Barclays Bank has promised to match whatever is raised.

The pub will charge people £1 each to take part in the quiz and everyone is welcome.

There is no need to book in advance; just turn up by 8.30pm.

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